a day in Louis Bryan’s life

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My name is LOUIS BRYAN, I was born on February 12 , 1996.
I live in Joué-les-Tours ( Indre et Loire) France.

I don’t speak yet.
I don’t walk yet.
Following a neonatale convulsive encephalopathy, I am affected by an ill-defined disease, the syndrome of OHTAHARA.
I am one of the children with cerebral lesions, without, however, visible signs by  IRM.
Daddy and Mummy continue a long-lasting battle since the onset of my disease. Today they are surrounded by a number of benevolents so that I should be able to progress with the help of intensive re educational exercises, called “Patterning”.
This method obliges me, every day, to be stimulated by creeping, to ameliorate my  sight, my touch, my reaction to cold and warm etc....
Thanks to the whole team, I already made a great deal  of progress. I go three times a year to Toulouse with my parents to ameliorate my program of sensorial hyper-stimulation, taught by the american therapists come especially.
I see everyday a kinesitherapist to verify my evolution and   I need a life-assistant from 9.00 AM to 6.00 PM.
All this has a high cost. I need  physical, material and financial help so that I could become an
autonomous little boy.


THANK YOU IN ADVANCE

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